Saturday, August 16, 2008

Telling the Kids - And my very own PSA!

I consider myself very fortunate to have created such and exceptional life for myself in Los Angeles. I don't just have great clients and friends, but I am surrounded by people who love me the way that I am. And even when I have crazy and outrageous ways of viewing the world, they don't judge me, but rather look at me in wonderment and laugh with me.

Among my close circle is Rima. On paper, there isn't a whole lot that we have in common, but in the heart she is "The sister I have chosen for myself". We have one of those relationships that you don't question but enjoy, knowing that we would each be there for each other in a heartbeat - It is just that one does not think the last phrase will ever have to be tested out, as cancer was not on the radar!

When I first moved to LA Rima took me into her family. I love her two children Pearl and Gus like my own.... not in some creepy 'single white female' kinda way, but in the way that I am filled with gratitude that they are in my life!! When I come home from a birth, my number one place to be is having tea with Rima while hugging one of the kids. Good luck trying to find me on a Sunday, because I am usually at Rima's enjoying a home cooked meal, great wine and excellent conversation with the extended family as the cousin's run around laughing. I love being around her family so much that I encourage Rima and her husband to go away for the night so the kids and I can have a sleepover! Their family grounds me.

So, as you can imagine, telling the kids was not easy. In fact, next to telling my family, this was the hardest one. When we told the kids, Rima and I encouraged them not to isolate, to be with the two of us while they named what they are feeling and to ask me any questions they wanted to.

What is so interesting to me is that Pearl and Gus are part of a generation that does not know Cancer as a death sentence.

When I was growing up my friend's mom had Breast Cancer. I remember the long days 'visiting' at her house. Her mom was upstairs in bed and we would be downstairs trying to be teenagers. No body took the time to explain to me what was going on and nobody ever talked about what was right in front of us. Back then "Cancer" was spelled with a capital "C" and wispered. Every once in a while we would go upstairs to say "Hi" too her mom and I remember seeing a version of her mother all swollen and red. And then her mother died. Coz back then, that is what happened. You had cancer and you died. Nowadays, that is so NOT true.

The good thing is that Pearl and Gus have already been through this with another 'mommy' friend in our community. For them, Breast Cancer means a loss of hair, times of being sick for a long bit and in the end of the journey: wellness. In fact, Pearl has already done a 'Walk' for breast cancer. Cancer is not something that is wispered, it is talked about, it is shared, there is no shame associated with it.

As we were sitting with the kids processing this new information, Pearl took off on her own. Granted, we were very careful to make sure she was not isolating her self with the information, and also wanted to honor her need for space. When Pearl came back to the living room, she dragged all of us over to my computer to show us what she created with the new information about my life. Rima and I were BLOWN away with the video Pearl made, as I'm sure you will be too. She hit the nail on the head, and I now have my very own Public Service Announcement!


After we told the kids we head out to the Ocean to do a big evening swim. We all ran like naked chickens into the Pacific: body surfing, laughing, getting pummeled by the waves, letting ourselves be cleansed by the water.... I felt so good I turned to Rima and announced, "Cancer has no idea who they are takin' on!! Cancer picked the wrong person, coz cancer is goin' down!" For the first time in days I actually ate a full on proper meal. I felt like I was turning the corner and felt centered once again.

It didn't take long for the kids to integrate everything. In fact, the next day we headed out to the farmer's market. While there Pearl and I bought a whole bunch of goodies, and with each purchase she handed me the bags. As usual, I was getting overloaded with purchases and my hands hurt!! So, I turned to Pearl and pulled "the cancer card"....

"Pearl, stop giving me all the bags! Don't you know, I have cancer!"

Pearl stopped and looked at me all serious, "Yeah, you do Ezbeth, but you don't have it in your hands!"

YES!! Ten Points for Pearl! Pearl gets it! She is so with the humour program!

We both had a good giggle and proceeded to get on with life as it truly is... me, as a 39 years old with cancer, and her as a 10 year old who is 10.

Life is good!

Friday, August 15, 2008

Everything is now cancer

Sitting in the place of having cancer in your breasts and lymphs but not knowing if it is anywhere else in the body is CRAZY making!!

Oh, shit, there is a red spot on my face.... it must be cancer.

What is that insane itching on my leg that will not go away? is the cancer now in my bones?

Um, I think my glands in my throat are swollen. I think the cancer has gone there.

Ugh, my left illiac crest aches... has the cancer advanced to the lymphs in my groin and just second away from exploding all over my body?

This is the thing about breast cancer, when it metastisizes in the body it has a habit of going to other organs, specifically the bones, liver, lungs and brain. What are the chances of it metastisizing in the body? I don't think anyone knows, but when you find it in your lymph glands, that is not a good sign, as the lymphs are the elevator system of the body and send the breast cancer cells to other parts of the body.

I'm sacred shitless that it is somewhere else in my body. I think I can 'feel' it moving in my body now. Overnight I have become a hypocondriac!! Who is this hypocondriac? I have no idea? I am never sick! I take yoga classes! I meditate! I eat organic!!

My business partner is CONVINCED that I do not have cancer because my brain seems to be working over time and my sense of humor is still in tact.

As Dr. F said, "If it is in your breast and lymph only, we are talking cure. If it is elsewhere, then we will talk about your treatment options. Let's just hope that your cancer is Lazy"

One day at a time.

URRRRGGGGGGGGGGGGGGGGHHHHHHHHHHHHHHHHHHHHHHHH

My sister and I are now talking a couple times a day. "What's the latest?" "This is what I found out on line." "So and so knows so and so. They recommend..." My sister talks to me about getting a second opinion. I feel really confident with Dr. F and an oncologist, Dr. G, made room for me in his schedule for Monday morning. I want to move quickly. Also, it has been an intense 3 days. I want to spend the weekend in Malibu taking a vacation from Cancer, not plotting second opinions.

How I know this is real....

There are two kinds of people in the world when it comes to stress... Those that can't eat, and those that over eat.

My whole life I have DREAMED of being the former, but true to my lineage, I have always been the later.

Without out getting into lots of details at the moment, lets just say that I know that this has to real, because for the first time in my life I have NO desire to eat. In fact, not only do I have no desire to eat, but I'm just plane old not hungry.

Rima is concerned and tempting me with all kinds of home made dishes.

For the past few days I have done my best to try and put something in my body... soup is about the only thing that will pass my lips, and I'm not even feeling hunger pains!

That is how I know this is real, coz for the first time in my life, instead of shoveling food into my mouth, I'm actually repulsed by the idea of ... well, anything!!

This way of being with food is as foreign to me as the cancer in my body.

Odd.

"Don't you know, I have Cancer damnit!"

I have been a student of the spiritual arts for years now. I have studied Loving-Kindness Meditations, participated in Priestess Trainings all over the world and explored Christian Mysticism. If I was curious about it, I gave myself full permission to explore it. The one thing that all these spiritual trainings have in common is the talk about getting into the present moment. Well, Ladies and Gentlemen, I am here to tell you that NOTHING has has ever brought me closer to the present mind than cancer. And my friends who have been down this road concur too.

...What do you mean you have not received my check for the phone bill. I mailed it out last week. Don't you know that I have cancer? I don't have time to deal with this red tape. I need to find a solution to this problem NOW!!

... How dare you cut me off at La Cienega Blvd. I have Cancer!!

...really, your boss can't understand why you are frustrated at your job... do I sound like someone who gives a shit?? I have Cancer!!!

...should you keep your hair long in front or go for the youthful bangs? How the fuck should I know? Don't you know that I have cancer!!

And even those who are close to me are getting into it. My sister was returning sunglasses at Lohmann's the other day and of course there was an annoying Lohmann's customer in front of her trying to return something too. And she stood there and thought, "Come on. Hurry up!! Don't you know, My sister has Cancer!!"

Now, don't get me wrong. I am interested in other people. I like to listen and people like to talk. And other times I like to talk and bitch and moan... and I have great friends who listen. I don't solve other people problems anymore (got done with that narcissistic way of being years ago), but rather, I hold space for people to understand their own process. I do this professionally, I do this personally. It is a gift that I have, it is a skill I have cultivated, it is a way of being in the world that works for me.

And I hate that when people call me now and I ask how they are doing, and they answer, and then they ask me how I am doing, and I answer, "I'm not sick, I just have cancer", they feel like complete idiots for complaining about their life in the first place. I really don't like that place, and it is the reality of where I am. What was considered 'normal' conversation just 2 days ago has changed radically overnight. And I can't change that. It just is.

God, I would give my left arm (and the cancer in the left arm :) to go back and complain about how I need to get to my colorist ASAP before my roots make me look older than I am, or what about my white trash nails that need a manicure? Or bitch to my sister about how I have NOTHING to wear - yet a closet full of clothes. All of that has become irrelevant, at the moment... and yet I look forward to those being the biggest challenges of my day.

So, I let things move and shift. Again, I am so NOT in charge.

Thursday, August 14, 2008

I want the choice to choose.

My friends won't let me go by myself to see the doctor(s). In fact, I'm treated like an invalid and am not even allowed to drive myself!!

We laugh, we joke. This is ABSURD!! It is a downright comedy that "I" have cancer.

At Christy Funks office I am greeting by a lovely receptionist who jokes along with me. The office for Dr. F feels really good. Clean, spacious, bright. And there are robes in the room that make me feel like I'm at a five star spa resort. I feel good here.

I fill out the form for Dr. F with ease, as I have no health issue in my body.

"Family History of Cancer?" "NONE", I write across all five lines in big bold black pen.

"Anything else you want the Doctor to know about you?"
"YES. In my family the women die of old age. My Grandmother Bertha smoked into her 70's, drank until her 90's, is highly opinionated and will be turning 100 this November."

I have not just one, but two friends with me. They insisted, and I am trusting that they are both their for a reason.

As we have been instructed by others who have been through this, I am not to take notes, as I will probably forget. It is the job of my support people to take the notes.

My friends and I are goofing around while I pretend I'm at a spa. Dr. F comes in and immediately I feel at ease, as though another sister has joined the party. Her gracious smile, generous heart and sense of humor are right on her sleeve. I like that about her. No secrets. I feel good around her. I trust her. No need to go elsewhere. I have found my Doctor. (oh, and for those of you who are wondering, she has all the right schooling, committees and degrees to impress those that care.)

Dr. F has set me up for all kinds of tests: Body Scan, MRI, Bone Scan, EKG ... The hope now is that the Cancer is "Lazy" and has spread no where else in my body. God I hope so. I think I have just about reached my limit with the cancer. I can handle breast cancer. I'm pissed that it is in my lymphs, but I can show up for that. But please god, please, I don't know if I have it in me to deal with it somewhere else in my body.

As she talks to me and goes over the details that my friends are writing down I watch her start to hesitate. In 2 short days I have already come to terms with chemo, radiation and a possible double masectomy. I can handle those words. But what the hell is she holding onto? Did she get a biopsy result back that is worse than they thought and she is hesitating to tell me?

In the middle of her explanations I stop her, "Dr. F. What are you holding on to? Did you get a test result back that is BAD?"

She pauses, takes a breath and starts, "Well, this is not easy for me as you and I are of similar age. I notice on your chart that you are 39, single and do not have any kids. I need to let you know that the chemo and raditation may make you unable to have children. Some people choose to harvest their eggs in this situation."

WHAT THE FUCK??? SHIT???? That was straight out of left field. And once again I feel the ground slip out underneath me.

"Ummm, Sufi, can you sit come up here and put your hand on my shoulders, I need some support.".

As a single woman who is in the birthing profession, this is not the first time I have contemplated having children or not. In fact, my mother asked me a year ago about whether I would consider freezing some of my eggs. And in that moment I was very clear with my, "No." For me, I know that raising a child is a full time job and that I need to have a lot of financial and emotional resources in place to be a good mom. Since I do not have the financial resources - and the emotional resources I have are great for me as a single woman, but not what I perceive I need as a mother, I know that being single and having a child is not in my truth. If I am to be over 40 and have a child, I will have to trust that the universe will team me up with the right man, at the right time and it will work out in spirit's timing. And I was completely okay with all this either way.... until this moment. Shit!!!!!!!!

It is one thing for me to choose this and it is quite another thing to have the choice taken from me.

I am about to ovulate any day now. And I know deep down inside that I don't have a month to wait around and harvest my eggs. I take in the information. I allow myself to get angry. I let it move. I allow for some tears and sadness and reply, "We don't have time. I need to start Chemo ASAP."

I totally forgot about the children factor. And, there are plenty of women who go through this and have children. There is no reason why I can't be one of those women.

Why is it for the first time that the prospect of not having children is making me want to have a child? Don't answer. The question is rhetorical. And the answer, like a lot of my life, is completely out of my control.

"Hi. How are you? I have cancer."

Wednesday, August 14

So now that I know I have cancer, the next step is to tell others. Telling people has become a full time job. I usually reach my max at about 4 people a day.

For some reason, cancer brings out everyone else's fear of death - and other's words can get mixed in with their fear and projections. As one of my friends said, "Wow, you seem so comfortable with everything. I feel bad that you have to deal with everyone else's stuff every time you tell them." How right on she is.

"Hi Bry, umm, give me a call back when you can. It is rather important."

"Hey Ange, give me a call at home. I've got some news for you. Not the 'jump up and down' kinda news, but the 'are you sitting down' kinda news."

"Hey Alison. How are you. Me, well I'm okay. I'm not sick, but I do have cancer."

Everyone's response is basically the same, a shocked: "What?"

For those of you who do not know me well, let me explain. I'm probably the healthiest person I know. I haven't touched a soda since the beginning of my waitress days in college. Since my first taste of an organic carrot in San Francisco back in 1992 I have never looked back. I rarely miss a day at work because I'm just not sick. I have traveled around the world eating street food whenever I can and never got the disentary I watched my travel companions doubled over with. I get a fever maybe, what, every 4-6 years if that?

I believe (or at least I used to) that physical issues can be a manifestation of ones mental or emotional state. So, I worked my ass off to come to terms with the deep rivers of rage and arrogance that ran through me. I enjoy going to a therapist and making peace with the story of my life and know that "my story happened to me" but I am "not my story". I have been to quite a few workshops to reclaim my self worth, to value myself and to love myself and I can sense how they have worked. I can be with myself with a plethora of emotions, both 'good' and 'bad'. I have worked with energy workers to clear my chakras, shamans to make space in my aura and of course acupuncturists to balance my meridians.

As of June 2008 I had officially declared to my spiritual teacher that I had spent 10 years trying everything I wanted to spiritually and have settled into my truth of what really works for me. For the first time in my life I felt like a whole and integrated being. I really really wanted to be in my body, to be fully present and contributing. I was done with (literally) 9 years of post graduate schooling and I was no longer a student.

I was hitting my stride with work and appreciating how good I am at my job. My inner entrepreneur was coming out to play within the business I have been called into and loving it! You see that photo of me over there? Since I was a child I have been scared of the camera. For some reason, on Monday the 11th, the night before I was diagnosed with cancer, I did my first ever photo shoot of myself on my mac so that I could start doing on-line dating. For the first time ever I was comfortable in front of the camera. I have always appreciated my inner beauty, but was amazed to see how beautiful I am on the outside! After 39 years of avoiding my self, I was finally feeling safe enough to let myself be seen!

I gotta be honest, for the first time I felt grounded, beautiful and whole.

But it seems like my 'wholeness' includes cancer. Go figure?

Wednesday, August 13, 2008

Huh? What?

My OB/GYN called to confirm that the biopsy came back positive for cancer. They still need to confirm the kind and stage, but yes, I have breast cancer and it is in my lymph node.

"I have breast cancer." I say to myself as I drive to check the belly of a pregnant mom.

"Don't you know that plastic water bottles can cause cancer?" I want to scream at the guy behind the counter as he hands me my soup and bottled water.

"I have cancer." I rehearse in my head as I buy my new iphone.

"Fuck, it is in my lymph glands. Fuck. Fuck. Fuck." as I prepare myself for a post partum meeting with clients.

The strange part is that I am the exact same person I was two days ago, but now I have been diagnosed with cancer. I can't cancel any of my client appointments, because if I do, when will I see them? It isn't like the cancer is gonna disappear and my schedule will free itself up.

So I move forward with my day. Checking things off my 'to do' list... coming to terms with the fact that I have cancer... Scheduling more doctor appointments...

As soon as my OB/GYN and I found out I had cancer she put a call into the popular Breast Surgeon Dr. Kristi Funk. They could not give me an appointment until the 25th, 12 days from now. That was just not gonna do. Now that I knew I had cancer I wanted chemo in me ASAP!!! I can hear within me this strange urgency of "Cut it out now!" "Burn the fuckers up with the chemo!" "Now, Now, NOW!!!"

So, I calmly ask the receptionist, "Can you put me on a wait list and call me if there is a cancellation?" Strangely enough she called me back 20 minutes later, "So, I just got a cancellation for a new patient visit for the next time she is in the office. Do you want it?".

This was to be the beginning of what my friend Sufi calls the "Red Carpet Treatment" of synchronicities that constantly remind me that even with cancer, I am divinely guided.